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ALS Saved My Life Until It Didn't

Jese Leos
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Published in ALS Saved My Life Until It Didn T
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Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects motor neurons, the cells that send signals from the brain and spinal cord to the muscles. Over time, ALS causes muscles to weaken and atrophy, leading to difficulty with movement, speaking, swallowing, and breathing. There is no cure for ALS, and treatment is focused on slowing the progression of the disease and managing symptoms.

ALS Saved My Life until it didn t
ALS Saved My Life... until it didn't
by Henri J.M. Nouwen

4.7 out of 5

Language : English
File size : 35419 KB
Text-to-Speech : Enabled
Screen Reader : Supported
Enhanced typesetting : Enabled
Word Wise : Enabled
Print length : 278 pages
Lending : Enabled

For some people with ALS, the disease can be a death sentence. But for others, it can be a life-changing experience. For me, ALS saved my life.

How ALS Saved My Life

I was diagnosed with ALS in 2015, at the age of 35. At the time, I was a successful businessman with a wife and two young children. I had everything I could ever want. But within a few months of my diagnosis, everything changed.

As my muscles began to weaken, I lost my ability to walk, talk, and swallow. I needed help with everything, from getting out of bed to eating. I was forced to give up my job and rely on my wife for financial support. It was a devastating blow to my pride and my sense of independence.

But as I struggled to adjust to my new reality, I began to realize that ALS was also a gift. It forced me to slow down and appreciate the little things in life. I learned to be grateful for every breath I took, every smile from my children, and every moment I had with my loved ones.

ALS also taught me the importance of community. I met other people with ALS who were going through the same challenges I was. We shared our stories, our tears, and our laughter. We supported each other through the good times and the bad. I realized that I was not alone in this fight.

Through ALS, I found a new purpose in life. I became an advocate for people with disabilities. I spoke out about the challenges we face, and I fought for our rights. I used my voice to make a difference in the world.

ALS saved my life because it taught me the true meaning of life. It taught me to appreciate the little things, to be grateful for what I have, and to never give up hope. I am a better person today because of ALS.

How ALS Almost Killed Me

In 2020, my ALS progressed to the point where I needed to be put on a ventilator. I was given a tracheostomy, and I lost my ability to speak. I was completely paralyzed from the neck down. I was trapped in my own body.

For the first time, I began to lose hope. I didn't want to live like this anymore. I begged my doctors to turn off my ventilator and let me die. But they refused. They told me that I still had a chance to live a meaningful life.

I didn't believe them. I was convinced that my life was over. But then, something amazing happened.

I started to write. I used a computer program that allowed me to type with my eyes. At first, it was difficult, but I persevered. I wrote about my experiences with ALS, my hopes, and my dreams. I wrote about the people who had supported me along the way.

As I wrote, I began to heal. I realized that I still had a lot to live for. I still had a voice, even though I couldn't speak. I still had a purpose, even though I was paralyzed.

I decided to keep fighting. I decided to live.

ALS Didn't Kill Me

I am still alive today, six years after I was diagnosed with ALS. I am still on a ventilator, and I am still paralyzed from the neck down. But I am living a full and meaningful life.

I am a writer, a speaker, and an advocate for people with disabilities. I have published a book about my experiences with ALS, and I have spoken to audiences around the world. I am using my voice to make a difference in the world.

ALS didn't kill me. It made me stronger.

ALS is a devastating disease, but it is not a death sentence. With the right support, people with ALS can live full and meaningful lives. I am living proof of that.

If you or someone you know has been diagnosed with ALS, please don't give up hope. There is still so much to live for. Find support from your family, friends, and community. And never stop fighting.

ALS may have saved my life, but it didn't kill me. And it never will.

ALS Saved My Life until it didn t
ALS Saved My Life... until it didn't
by Henri J.M. Nouwen

4.7 out of 5

Language : English
File size : 35419 KB
Text-to-Speech : Enabled
Screen Reader : Supported
Enhanced typesetting : Enabled
Word Wise : Enabled
Print length : 278 pages
Lending : Enabled
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The book was found!
ALS Saved My Life until it didn t
ALS Saved My Life... until it didn't
by Henri J.M. Nouwen

4.7 out of 5

Language : English
File size : 35419 KB
Text-to-Speech : Enabled
Screen Reader : Supported
Enhanced typesetting : Enabled
Word Wise : Enabled
Print length : 278 pages
Lending : Enabled
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